cystic-fibrosis


Lung Transplants—Are They An Option?

Patients with cystic fibrosis that have the lungs involved are the most vulnerable to infections and risk of death. The lungs are essential to life and when their capacity to breath is severely affected quality of life can be affected. Treatments for patients with cystic fibrosis in their lungs and air passages should have daily physiotherapy and postural chest therapy. Tapping on the back and chest manually is one form of treatment. It is performed using a cupped hand and is called chest percussion. Other methods are using a specially made vest that vibrates to loosen the mucus so it can be coughed up. Other breathing devices have been invented to exert pressure on the chest and lungs to loosen the mucus. These are called oscillatory positive expiratory pressure devices. By breathing out into one of these devices, vibrations are created that loosen and help remove the thick secretion build up.

Normally patients with cystic fibrosis affecting the lungs and air passageways should have thirty-minute treatments twice a day. As an adult, you may be able to perform the physiotherapy on yourself. A child will need the help of a parent, adult, guardian, or older sibling. This therapy is necessary but many times a teen will rebel and refuse to take part in treating their disease. If that should occur, you should contact your doctor for a referral to a psychologist or counselor. It is necessary for treatments to continue especially the chest physiotherapy and nutritional supplements.

In severe cases of cystic fibrosis with lung involvement a patient may need oxygen on a continuous basis. In the past a patient may have been restricted to his or her home because of the bulkiness of the oxygen tank. Today there are many more improved methods of receiving oxygen. A liquid oxygen machine run by electricity gives a constant supply of oxygen through a tube that has the capacity to run throughout the house. Oxygen concentrators are available that are small enough to be carried around and provide oxygen while the patient runs errands and attends social events. This allows the cystic fibrosis patient to have a better quality of life and aid in their breathing.

A lung transplant may be an option a cystic fibrosis patient may consider. Although a lung transplant will not cure the disease, it will allow them to have better breathing capacity. It will not stop the mucus from forming in the transplanted lungs. Only the most severe cases of cystic fibrosis will be considered for a lung transplant. They will be put on a waiting list and need to be considered as good candidates for a lung transplant. As with any major surgery, there are risks and complications involved. Patients that have cancer, AIDS, severe damage to other organs, overweight, or if they are diagnosed with a major psychiatric illness are not good candidates for lung transplants. This method of treatment should be considered a last resort and again, it will not cure cystic fibrosis.

 

 

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Cystic Fibrosis

 

 

 

Cystic Fibrosis


Standard Tests For Diagnosing Cystic Fibrosis

... to an infant until they are two to three months old. There are other tests that can be performed to test for cystic fibrosis. You may be tested to see if you are a carrier with a genetic analysis from a sample of your blood or saliva. Your child can be tested before birth. If you get a diagnosis of cystic ... 

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Chest Physiotherapy—What Is It And How Does It Work?

... next to them. There are machines that provide a constant flow of oxygen. It can be set in one room of the house but have long enough hoses to allow the patient to freely roam in their home. Sometimes, a medical doctor may recommend a lung transplant. The conditions need to be just right for the patient ... 

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Coping Skills After The Diagnosis

... devastating for families and the patient. Everyone will go through a range of emotions and each one on their own timetable! Some of those emotions include anger, fear, and guilt. You will have concerns about your child's health, future, and possible financial problems. Teens will have a difficult time ... 

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Self-Care For Cystic Fibrosis Patients

... medication, treatment and how to recognize infections early. Having a child with cystic fibrosis is stressful, especially if you are the primary caregiver and need to give your child daily chest percussion. The child should have the treatment at least twice a day and for a thirty minute period of time. ... 

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Cystic Fibrosis—Life Threatening And Incurable

... Pneumothorax is caused when lung tissue ruptures and air gets trapped between the chest wall and the lung. Coughing up blood is another severe complication when the disease attacks the lungs. Complications can occur in the intestinal tract also. A cystic fibrosis patient may experience intense stomach ... 

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